Update to the LeRoy (NY) teenagers’ mystery neurological illnesses

oatka-creek-leroy-nyOver the past couple of years, I had written a few articles about a mystery neurological ailment that had struck about 20 teenagers, most of whom were students in high school at that time in LeRoy, NY, a small town about 30 minutes from the city of Rochester. The teens suffered tics and other neurological symptoms that seemed to mimick Tourette syndrome, but was never diagnosed as such.

None of the teens had ever exhibited other symptoms of a neurological deficit, and most of them have subsequently recovered. Two new cases appeared in 2013, but none since.

Numerous individuals, including officials of the Monroe County and New York State Departments of Health, attorneys, antivaccination cultists, and others whose speculation ran from useful to outright delusional.  Many individuals who “diagnosed” the teens without actually ever meeting them (proper diagnosis of neurodevelopment disorders requires one on one assessment, not the famous “let’s diagnose medicine over the internet). Continue reading “Update to the LeRoy (NY) teenagers’ mystery neurological illnesses”

Updates: LeRoy mystery neurological illnesses

This article is an update of one I wrote several months ago. I had presumed the story had ended. It hadn’t.

Background

In spring 2012, I had written a few articles about a mystery neurological ailment that had struck about 20 teenagers at a high school and surrounding area in LeRoy, NY, a small town about 30 minutes from the city of Rochester. They suffered tics that mimicked Tourette syndrome, but was never diagnosed as such. Most of them have recovered, although two new cases have appeared.

Medical and scientific findings

First, Erin Brockovich, yes THAT Erin Brockovich, decided to get involved. In an announcement in August, they stated that they found nothing:

There is no link specifically that I can draw to environmental exposure because there are so many environmental exposures that occurred at the high school.  Continue reading “Updates: LeRoy mystery neurological illnesses”

LeRoy neurological illness mystery–update 3–is it conversion disorder?

Since I last wrote about the group of individuals suffering from some neurological issues in LeRoy, NY (outside of Rochester), very little new information has come to light.  The junk science purveyors, such as the Age of Autism, is still trying to insinuate that vaccines have something to do with the “outbreak”, although they provide not one tiny bit of evidence supporting such a belief.

A few individuals still claim it is PANDAS, or Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections, but I am highly skeptical of physicians who self-promote their ideas outside of the standard peer-review process, and that a lot of reviews of the research into PANDAS has come out negative.  As I’ve mentioned before, a recent review of research in PANDAS came to this conclusion: “Despite continued research in the field, the relationship between GAS and specific neuropsychiatric disorders (PANDAS) remains elusive. It is possible that GAS infection may be but one of the many stressors that can exacerbate tic/Tourette’s or OCD in a subset of such patients.”  If there’s not even agreement that PANDAS exists, then a self-serving promotor of this particular diagnosis should be met with a high level of skepticism.  Even researchers who accept PANDAS as a legitimate diagnosis, such as Susan Swedo of the NIMH, are skeptical of such a diagnosis. Continue reading “LeRoy neurological illness mystery–update 3–is it conversion disorder?”

The newest cause for the LeRoy neurological issues

I’ve published a few posts over the past month about a group of teenagers and one adult who are experiencing some neurological symptoms in LeRoy, NY, a small town outside of Rochester, NY.  Those symptoms seem to mimic Tourette Syndrome (TS), a neuropsychiatric disorder that is characterized by multiple physical or motor tics plus at least one vocal tic.  It is probably inherited, although a gene for it has not been identified.  Since most of the teenagers who exhibit the symptoms attend LeRoy High School, the New York State Department of Health has carefully examined the school for any environmental issues, and have found none.  Erin Brokovich, of the eponymous movie, has gotten involved and has postulated that a train wreck over 40 years ago spilled toxic chemicals, such as arsenic and trichloroethylene, which may be the cause. Continue reading “The newest cause for the LeRoy neurological issues”

Activist Erin Brockovich looking into teens’ mystery ailment

Activist Erin Brockovich looking into teens’ mystery ailment – USATODAY.com

I keep running into this story in various locations on the internet. During the past few months, 15 teenagers, mostly students at LeRoy (NY) High School just outside of Rochester, NY, reported neurological symptoms that resemble Tourette’s Syndrome.

Erin Brockovich, namesake of the Julia Robert’s movie, is investigating whether a train wreck in 1970 that spilled 35,000 gallons of cyanide and trichloroeythylene (TCE) near the high school caused or partially caused the symptoms.  Then we have anti-vaccination blogs that blames it on the HPV vaccine, Gardasil, of course, without one tiny little bit of evidence.

The school district has reported that there are no known environmental issues in the air and water.  Given very strict privacy laws, we don’t know if there’s some other medical link (like HPV vaccine).  Of course, if HPV vaccine or some other pharmaceutical were involved, it would be very curious that only a small, rural, upstate New York town would be involved.

TCE is a well known contaminant of groundwater all over the world.  There is some evidence that TCE may be involved with Parkinson’s Disease, though the effects usually take many years.

Right now, there is no evidence that points in any direction.  If you hear that it’s vaccines, you may as well blame alien abduction, because there’s no evidence for that either.  Everything is just speculation.